The MRI is next week

We met with neonatology follow up clinic on Wednesday for Kenny. They pretty much follow his development along the way and get you connected to anyone you may need to be connected to for support. We have a lot of support in place for Kenny already. And for the standard's in BC, we have it early as well! Our OT and PT usually don't get the kids until they are closer to ONE!!! This is just due to wait lists! So we are lucky that Kristen has paved a smooth road of knowledge for me to know how to be really squeeky to get everything going so early. We have also visited with Bio-chemical Disease Control a few weeks back. They have done blood work, and are checking for anything metabolic for him. If they don't find anything there, they will also check details of his DNA. At that appointment the DR. mentioned something about his nose. All my kids have that nose. My friend when he was born mentioned his nose and how all of the kids have the same nose. Was that forshowdowing for the here and now??!! So the dr mentioned the nose. Well on Wednesday, the neonatologist, yep she mentioned the nose too! She also said that he has different ear canals too. A couple of features that may lead her to believe that there is a storage disorder. But his liver and spleen aren't swollen too. So in checking storage disorder's, it can affect the spleen, liver, and the brain! It's the blood not able to get rid of the lipids and just storing it! So I told them that he has an MRI next week so if there is any other searching that they want to do, to do it at the same time. They were pleased to hear this. Maybe they will find something?! Who know's.
So in checking his ear's they also found that there is still fluid behind his eardrums. So off to audiology we go. We were headed there anyways, just to follow-up with hearing. Not that I'm worried. We already deal with hearing loss here, so this is something that isn't new to us. Yep, the tymp's showed no movement of the eardrum, and off to the ENT!!! my day just kept getting longer and longer!! The ENT saw the fluid, so again I said can we put the tubes in his ears when he is under for the MRI. That seemed reasonable, as long as radiology didn't have a problem with it. So now till next week, and then to wait for phone calls and see!