Angel Andrew

Again I hate making these posts. They say that the survival rate of CDH is 50/50!! I some how find that hard to believe by the amounts of Cherubs earning their Angel wings. Please keep Andrew's family in your thoughts and prayers. http://babyandrewhobbs.blogspot.com/

WOW!! He's gained weight

After Kenny's week of power puking and being 8lbs 3 oz for a week, he ended up gaining 10 oz over the last week!!! It's really amazing how quickly the reflux med's have helped him. He's getting his neck strength going on now, and starting to smile at us!

Courtney, well poor little girl is getting two eye teeth in! She actually looked at Daddy today pointed to her gums and said "owie". So cute! So sad at the same time. I have to say, after having two speech/ and developmentally delayed kids first, watching a child develop 'normally' has been quite neat! The language that she has at 20 mths old already just blows my mind! It's great though, because she's a great model for Kristen and I think that Kristen is learning from her!

Finally settled out

Finally Kenny's reflux has mellowed out. My fears of the unknown reasons are also going to be put to rest with his scheduled head ultrasound on Fri. Too bad it took so long to get a damn appointment. I'm pretty sure that it's not due to the pressures of the brain, but what if it was! How can they let it go so long with such a worrysome issue??!! It's really rediculas. But his med's are helping, and he's now able to get some more tummy time and is lifting himself up onto his forearms! I'm so impressed!! He even did some cooing at his toys yesterday!

Kristen has been doing some amazing things with her communication as well!!! I'm so proud of her when she does. It's becoming so much more conventional types of talking/signing that it's just so cute!

Courtney, well she's gonna make me gray I tell ya!!!...lol....You can tell from the picture of her in Kenny's crib with him sleeping in it!! Crazy kid.

Joe has been doing a lot more Autistic like behaviours lately. It's kinda our fault though. He does seem to benifit from the Gluten free/ Casin free diet. I feel sorry for the kid. It's almost like watching someone with terrets syndrome (sorry for the spelling), and he can't help but do the behaviors. So now we just have to wait for the Gluten to leave his body, and my calm happy Joe will come back!

It seems it's getting better

Thank goodness. It seems like the med's are finally helping the poor little fella. He's not screaming through his feeds anymore, and eating more again. Thank god we had Kristen and I now have the knowledge in what to do to help so that we could avoid feeding issues.

It also seems that Kenny's eyes are more focused and he's starting to track now. We still have to go to the eye dr to get confirmed how much he is seeing and what that's going to look like.

Everything around here is looking up, and is A-O-K!!!

The upper GI showed nothing so far

So the Upper GI study showed nothing so far. So I stalked out the ped because I knew that he was on call at the hospital...lol. And he told me just to go to his office, it's across the street from the hospital, and we got the prescription for Omeprazole. So here we go with another waiting game of seeing if this works. We're still waiting for the head U/S too.

Upper GI study

Tomorrow is Kenny's upper GI study. I'm hoping that we can get some answers. The puking is just so terrible to watch. And I worry about growth and development as well. I can't deal with another kid with feeding issues. It's been so draining working through Kristen up until this point....and she still doesn't chew. Explain that one to people. They just don't get what it means or how a kid can't chew. Well it's not that she can't, it's that she doesn't really get on how too. Oh well. Again, I'm hoping to get some answers tomorrow, but who know's if they will tell me anything at all!

Dr's appointment.

I took Kenny to the Pediatrition today. My gut feeling about the power puking and eyes made me feel that I needed to do that. I wasn't satisfied with what the dr's had said on Sat in the ER. So the dr is sending him for a head ultrasound, just to put that to rest for me. It's a possibility, but who really knows until we look. He's also sending him for an upper GI study. My feeling is that this may be the culprit. If there is something tight or loose with his tummy then it needs to be fixed with surgery. If it is none of the above, then we need stronger reflux meds. It's just so awful to watch a child reflux. It brings back the awful memories of going through this with Kristen. And of course all of the emotions of that time come rushing back. I just want one day for me not to be able to think about my kids in a 'clinical' or 'theraputic' way. I'd love to just be MOM! I know that that's not my path though. I know this in my head, but in my heart it hurts. I know in my head that everything happens for a reason, but again, not in my heart. I stay strong for my kids, because if I don't who will. Well I know someone will, but it's not their mommy!