Kenny has Infantile Spasams. They are essencially seizures. The poor kid. I'm just kind of numb right now with everything and just going day to day. Why is it that everything keeps hitting this house??!!
:( So sorry! Hoping that medication will be able to help curb them! I can't answer why the dark cloud, perhaps a higher being knows something you and I don't? You're one hell of a mother and don't ever forget that! Hang in there, let me know if I can help in any way! Hugs! Sheryl
Hi. I am friends with the Myers family (carter). Kellie recently told me about your son being diagnosed with IS. My son was diagnosed over 3 years ago with it as well. It has been quite the journey. I pray that the medication works well for your little guy!
Hi =) I noticed that your blog links to mine so I came over to take a look. I am not sure how you might have found us, but Dylan also had Infantile Spasms. We tried a few things before a round of ACTH kicked them. Please contact me if you have any questions, hugs and prayers to you and your family.
:( So sorry! Hoping that medication will be able to help curb them! I can't answer why the dark cloud, perhaps a higher being knows something you and I don't? You're one hell of a mother and don't ever forget that!
ReplyDeleteHang in there, let me know if I can help in any way!
Hugs!
Sheryl
Hi. I am friends with the Myers family (carter). Kellie recently told me about your son being diagnosed with IS. My son was diagnosed over 3 years ago with it as well. It has been quite the journey. I pray that the medication works well for your little guy!
ReplyDeleteHi =) I noticed that your blog links to mine so I came over to take a look. I am not sure how you might have found us, but Dylan also had Infantile Spasms. We tried a few things before a round of ACTH kicked them. Please contact me if you have any questions, hugs and prayers to you and your family.
ReplyDelete